If you have not gotten tested for your disease, do it so you can have the facts at hand. Hopefully there is a conclusive genetic test you can take.
If you have a dominant genetic disorder, I would say it would be wise to avoid having children. You could consider adopting white children, or using a sperm donor very similar in appearance and temperament to yourself to get your future wife pregnant. Of course, your future wife would have to be fully on board with this.
If it is recessive, and you have a 50% chance of passing it on, you can take the chance in having a natural child, but you will probably want to get prenatal testing with the option of abortion. Yes, this is abhorrent to many here, so choose wisely, as they say. Again, your future wife will have to be completely in agreement on this as well.
If you want to let nature take her course, so to speak, carefully evaluate the quality of life and the potential contribution a future affected child might make to the world. Your experience and your mother's experience would be the best guide for this. You probably have other affected ancestors whose lives you can look at. Just because you have a degenerative disease that shows up later in life does not necessarily preclude one to having a worthwhile life.
The other issue is also, if you are showing mild symptoms now, will you be able to care for your children sufficiently long, as you get older?
This is a really tough decision, and there probably is no one right answer. I wish you all the best in your search for answers. Hopefully the universe will conspire to bring you to the right choice for you.
